Eculizumab User Reviews & Ratings
Brand names: Soliris, Bkemv, Epysqli
Condition | Avg. Rating | Reviews | Compare |
---|---|---|---|
Myasthenia Gravis | 2 reviews for Myasthenia Gravis | 13 medications | |
Paroxysmal Nocturnal Hemoglobinuria | 1 reviews for Paroxysmal Nocturnal Hemoglobinuria | 8 medications | |
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- Anonymous
- Taken for 2 to 5 years
- May 23, 2024
Soliris (eculizumab) for Myasthenia Gravis "I have been taking Soliris for about 5 years. It has been great. I have only had to have pheresis and IVIGs a couple of times since I started it. I have the side effects though. I have a new symptom, which is burning feet. I don't know if it's from the drug or not?"
- Nick
- Taken for 1 to 6 months
- July 10, 2019
Soliris (eculizumab) for Myasthenia Gravis "I started taking SOLIRIS January 2019 and by July 2019 I had throat cancer which was undetectable by CT scan but was confirmed by tissue biopsy."
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Soliris (eculizumab) for Paroxysmal Nocturnal Hemoglobinuria "This drug is for Paroxysmal Nocturnal Hemoglobinuria (PNH) but disease is heterogeneous. I feel worse being on it. Doctors push it-patients just do it. It is too much work. I never should have started."